Wednesday, June 26, 2013
A practle guide to starting blended food
In my last post my goal was to empower momma's (or dad's) to give homemade blend a try. I wanted to ensure them it is not as hard as they may have heard from professionals who, quite frankly, have never done it but only have read about it. Today, I want to give a few practicle tips that may be helpful.
First of all, you need a blender. If you intend to do homemade blends for a substantial amount of time, you need to invest in a good blender. The two recommended by blending parents are the Vitamix or Blendtec. I know the Vitamix has a medical discount where in exchange for a doctors note of medical necessity, they will send you a refurbished one at a pretty good discount. But, even with the discount, they are expensive.
If you can not afford one of these high powered blenders, don't fret! Start saving now and use your regular old blender in the mean time. You may not be able to pulverize meat like the high powered blender allows, but you can still make a blend for your kidd-o. I made baby food for all 3 of our other kids with a normal blender... it just takes a little more liquid and a little more patience, but it can be done!
Secondly, if you want to "lazy-blend" like me and make big batches once a month, start saving for an extra freezer (preferably a deep freezer). You can find used ones pretty cheap on Craigslist. I know there are many families who make a blend every day for their kids, but I just can't do this for several reasons: #1 I'm too lazy to do all that cooking, blending, and cleaning every day, #2 I have 3 other kids to take care of, #3 I can't get laundry done as it is.. adding one more thing to my to-do list isn't going to help this, and #4 again... I'm lazy. I like to make one huge batch for the month then freeze it.
Once you get enough freezer space, place the blend in glass mason jars and freeze them without the lid. After they are frozen, put the lid on to keep them fresh. Dominic eats enough that every day we go through one mason jar. I have the night nurse make the feedings for the whole day (or in the rare case we don't have a night nurse, I make it). It's super easy! You defrost the mason jar (the day before or in the microwave that day) and pour the right amount into bottles. We also make all of the milk bottles so all day we just have to grab a bottle out of the fridge when it's time to eat. Again, a short cut for those who are lazy/busy/whatever.
My last suggestion: recruit help! I am lucky enough that my momma helps me make Dom's blend every month. If you don't have a momma or momma-in-law close, bribe a friend with a margarita. You can easily do it alone, but a friend and a margarita (or coffee before noon... whatever) makes it way more fun. :) And besides, everyone wants to help these special kidd-o's... this is a practical way they can!
So, go ahead... blend!
In Them,
Chasity
Friday, June 21, 2013
Blended food... it's not rocket science
| Dominic trying out a gait trainer... still a little too small for it! |
Often I receive praise (very uncomfortably I might add) from people who perceive me as some sort of super-mom for feeding Dominic real food. While the sentiment is kind, the reality is they would do the same thing if they has a tube-fed child and were expected to. Just as we are all expected to feed our typically developing children good, wholesome, nutritious food, we should also be expected, taught, empowered and encouraged to feed our tube-fed children the same!
With the exception of the children who require specific diets with very close supervision due to medical complications, beginning a blended diet is not that hard. If in fact your child does have specific issues that real food would affect, I would encourage you to look high and low for a knowledgeable and supportive dietitian to guide you through, even if this means contacting the woman who literally wrote the book about blended real food (as I did in a moment of despair). Because Dominic isn't typical and his motor development isn't either, he doesn't fit into any of the pre-made growth charts pediatricians use. Thus after searching and asking in many different ways for some guidelines of feeding him, I once again took matters into my own hands and now have him followed by a dietitian from Early Childhood Intervention. All this woman does is come out once a month to weigh and measure him. We then look at his growth velocity curve and decide if he needs more or less quantity, fat, calories, etc. I then adjust that next months blend to fit that.
At the urging of our hospital dietitian, I, in the past, made complex spread sheets with everything weighed and measured out to the ounce, charting everything from calories, fat, cholesterol, sucrose, etc. per ml of blended food. I found this to be a ridiculous waste of time. My new method of following his growth velocity curve seems to be working much better for us (and is MUCH less work). As a small example, if he is gaining weight too slow, I increase his meat and coconut oil in the blend. If he needs to slow down on his growth, I substitute lean chicken breast for roast and cut down on the coconut oil and butter.
I want to give you a brief outline of how we started with Dominic in hopes of empowering you to give it a try!
Just as any typically developing child, you want to start with one food at a time to check for intolerance's. You can begin to check for intolerance's using jarred baby foods since you won't be using enough to warrant making a huge batch of real blended food. We have never used a pump for our blended foods, we bolus every feeding with a 60 ml syringe over 15-20 mins (this time got much fasted after introducing real food- less spit up issues). Some people use a pump, but this seems to be more work than it's worth. The pump could get clogged, you have to worry about the food spoiling hanging in the feeding bag for so long, and how in the world could you possibly clean all the bag and tubing to ensure safety? Some people so it. Not I. (Side note: often beginning blended foods decreases the need to feed over such a long period of time, thus making bolusing the food more practical. It also, in our case, reduced then finally stopped his spitting up and reflux). Here's how we started:
Week 1: 10 ml green beans via med port (in place of 10 mls milk)
Week 2: 10 ml green beans, 10 ml carrots (in place of 20 mls of milk)
Week 3: 10 ml green beans, 10 ml carrots, 10 ml butternut squash (in place of 30 mls milk)
..and on and on until you get a good variety of food being tolerated.
We continued along this path until we had a good amount of usable food to blend. He now receives 180 ml blended food bolused 3 x day and 180 ml cow/breast milk mixed with yogurt and prunes 3 x day. He gets all of his milk needs during his 3 milk "bottles" and gets the grunt of his nutrition during his 3 "solid meals." Please be sure to consult a pediatrician or dietitian to make sure your child's milk need is being met. We fill this need with our "milk bottles" between solid meals. We also do not feed him over night, one more thing the blended food allowed us to cut out.
PLEASE comment (or e-mail) with questions! I want to be a resource to any momma's out there to give this thing a try. I promise you'll be glad you did!
In Them,
Chasity
Friday, June 14, 2013
Vent weaning... round 2!
| Dominic with his main squeeze, Bridget (a few months ago) |
It's official! July 1st we will be admitted to the hospital to try to get Dominic off of the vent for good! This process, from what I understand, takes about 2 weeks. But if it successful that will be 2 weeks well spent. We will wean 1 hour a day (we're only on 12 hours a day now) and go down until he is off completely. Once he is completely off (if he makes it that far) we will be kept in for a few more days to monitor how he is doing with no vent at all. We're keeping our fingers crossed.
A little while ago, after my mom and I finished making Dominic's blended food for the month, I said to her "I'm already mad about being admitted in the hospital." She reminded me not to start that way, to be positive and remember this admission is a good thing. "Don't be that mom," she said. To which I snarled my lip at her and reluctantly agreed. This is one of those times a person can either grow in virtue or fall into angry despair. It seems to be my style to do the latter, but I'm going to try for the former this time.
It's easy to get your panties in a wad in the hospital. That's right, I just said panties because this expression seems to get at the gist of the feeling. At first it's not that bad, then it gets annoying, then it's unbearable, then it just pisses you off. It is irritating dealing with all the various professionals who come in the room at any time they please. It's irritating gaining 10 pounds from eating hospital food for 2 weeks. It's exhausting sitting in that little room, doing nothing. BUT... it is much better than what some of the families on the floor are going through.
During our last admission I met a mom whose son was in the hospital going on 9 months for a traumatic brain injury. I used to treat these kids, with little sympathy for the plight of the family I might add. Sure I felt bad it happened, but I needed to get on with my day. I never ministered to these people, asking how I could help, or just sitting with them for a few minutes. I had a full case load and lots of kidd-o's to treat. It never occurred to me that my presence, un-scheduled, may be a big stressor to them. I didn't get what a beating being admitted really was. It was normal, everyday life to see these things. I would even comment on how the mom might be a little on edge and flustered. I wish I could slap my then-self and tell her all the secrets I know now.
So, here's to perspective. To remembering how good we have it. To allow myself to be stretched- after all it's not I that will do the work of growing in virtue... I just have to consent. And if you happen to get a worn-out, flustered, fed-up blog from me during these two weeks, feel free to slap me and remind me of that kid down the hall.
Friday, May 31, 2013
A lesson from Miss Jessica
I'll admit it: I'm spoiled. Like a little child who panics when they can not see their father and runs around frantic until they find him and are assured of his presence, so do I. But like any good father who will assure their children he will not leave him, so does my Father. I cling to Him, panicked and lacking faith, asking why He left me. Of course He never left in the first place, He was just giving me some room to see what I would do, to allow growth. But I am too small for room, I need constant re-assurance, I need my little hand in His big one lest I doubt. I can run off for an instant but lacking faith I must constantly come back to make sure He remains, just as a little toddler who is just having her first independence in the safety of her back yard.
And in my Father's goodness, He allows me to remain in this state of toddler-hood, just barely able to walk. He lets me go, never allowing me out of His sight, but when I am panicked and searching for His face, He races back to show Himself. So He did yesterday. After writing about my repulsion and subsequent shame, my panic, my dizziness with doubts and questions, He set up a very special meeting yesterday. We were privileged to meet Miss Jessica.
Miss Jessica sat in her wheelchair, arms and legs still like stone, her body small and undeveloped from decades of non-use. Her head supported, giving room for her trach and vent tubing to wind behind her chair. I walked past her and she lamented about how unfair it was that I had a pager like she did. He mother patiently explained everyone waiting for the doctor gets one and it is not unfair. I turned, swallowed hard, and spoke to her. I told her my name, she told me hers, then I told her I had a son just like her with a trach and a vent at night. With an adult body and a blessed child's mind she squeeled in excitement. I brought Dominic face to face, or should I say wheel to wheel, with her and her oohs and ahh's commenced. She poured over his blue eyes, his blond hair, his little trach and tiny chair. She was full of delight to learn that his vent is exactly the same as hers. Then the older kids reluctantly came over, face downcast with eyes shyly staring at our new friend. I introduced Miss Jessica to them and she went on and on about how handsome the boys were and how sweet and precious Mary is. Mary whispered Miss Jessica was too small to be a "ba-dult" and I explained she is just like Dominic, only 40 years older.
We sat and talked for quite some time, taking turns between her delightful forced speech (talking with a trach and vent is difficult and laborsome) and the experienced, tired but happy eyes of her mother. She lives at home with her mother and father and sleeps in their room. She excitedly told me about her nieces and nephews and it was apparent she gained much happiness from her siblings who had grown and moved out, having families of their own. She stopped, needing a drink and her mother brought the straw to her mouth. She was unable to even do this for herself, yet she was happy. She radiated joy, and if one were to be able to see past the exterior for one instant, one would see how easily she captivates one's heart. I was sad to leave her when the nurse called us back, wanting to sit and be with her all day if I could. She was sad to see Dominic go but was delighted that I wanted to take her picture. She just couldn't believe all of the attention she was receiving. My Miss Jessica, the face of my Father, restored my hope.
People often say they wished God would just talk to them, just tell them what to do. He does, He just doesn't use our words, he uses His. Yesterday Miss Jessica was His words, His embrace, His re-assurance that everything would be okay, that He is near, He is faithful, He will never abandon us. With Him is safety, joy, protection. Though we might fear we will drown from the torrent that falls upon us, He is there, allowing us to grow in love and confidence in Him, ready to extend His sure hand to save us before we fall. I am embarrassed for loosing hope, loosing faith so quickly, but moreover I am joyful knowing that my Father does not despise my smallness. Just as a father may sigh at the constant need of his children, still he secretly glories over the fact of being needed and the helplessness of his children. If we panic, we need to only stop and do what I tell my children to do: remain calm and look around, I am never far off.
And in my Father's goodness, He allows me to remain in this state of toddler-hood, just barely able to walk. He lets me go, never allowing me out of His sight, but when I am panicked and searching for His face, He races back to show Himself. So He did yesterday. After writing about my repulsion and subsequent shame, my panic, my dizziness with doubts and questions, He set up a very special meeting yesterday. We were privileged to meet Miss Jessica.
Miss Jessica sat in her wheelchair, arms and legs still like stone, her body small and undeveloped from decades of non-use. Her head supported, giving room for her trach and vent tubing to wind behind her chair. I walked past her and she lamented about how unfair it was that I had a pager like she did. He mother patiently explained everyone waiting for the doctor gets one and it is not unfair. I turned, swallowed hard, and spoke to her. I told her my name, she told me hers, then I told her I had a son just like her with a trach and a vent at night. With an adult body and a blessed child's mind she squeeled in excitement. I brought Dominic face to face, or should I say wheel to wheel, with her and her oohs and ahh's commenced. She poured over his blue eyes, his blond hair, his little trach and tiny chair. She was full of delight to learn that his vent is exactly the same as hers. Then the older kids reluctantly came over, face downcast with eyes shyly staring at our new friend. I introduced Miss Jessica to them and she went on and on about how handsome the boys were and how sweet and precious Mary is. Mary whispered Miss Jessica was too small to be a "ba-dult" and I explained she is just like Dominic, only 40 years older.
We sat and talked for quite some time, taking turns between her delightful forced speech (talking with a trach and vent is difficult and laborsome) and the experienced, tired but happy eyes of her mother. She lives at home with her mother and father and sleeps in their room. She excitedly told me about her nieces and nephews and it was apparent she gained much happiness from her siblings who had grown and moved out, having families of their own. She stopped, needing a drink and her mother brought the straw to her mouth. She was unable to even do this for herself, yet she was happy. She radiated joy, and if one were to be able to see past the exterior for one instant, one would see how easily she captivates one's heart. I was sad to leave her when the nurse called us back, wanting to sit and be with her all day if I could. She was sad to see Dominic go but was delighted that I wanted to take her picture. She just couldn't believe all of the attention she was receiving. My Miss Jessica, the face of my Father, restored my hope.
People often say they wished God would just talk to them, just tell them what to do. He does, He just doesn't use our words, he uses His. Yesterday Miss Jessica was His words, His embrace, His re-assurance that everything would be okay, that He is near, He is faithful, He will never abandon us. With Him is safety, joy, protection. Though we might fear we will drown from the torrent that falls upon us, He is there, allowing us to grow in love and confidence in Him, ready to extend His sure hand to save us before we fall. I am embarrassed for loosing hope, loosing faith so quickly, but moreover I am joyful knowing that my Father does not despise my smallness. Just as a father may sigh at the constant need of his children, still he secretly glories over the fact of being needed and the helplessness of his children. If we panic, we need to only stop and do what I tell my children to do: remain calm and look around, I am never far off.
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| Sweet Miss Jessica and her buddy, Dominic |
Thursday, May 30, 2013
More thoughts about the school
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| Who needs a dog-pile when you can have a Dom-pile? |
There is a war going on in my head about my last post, "A school for Dominic." My left brain argues this school would be so great. It would let him be around his peers, allow him to experience care from other caring people, get him hooked into the community for the profoundly disabled. My right brain says: "so what." Which brings me to the ever present argument all parents have with themselves: am I doing the right thing for my child, both NOW and in 20 years?
The other day my kids and I ate at a pizza place with a good friend. While we were there clients and care takers from the state school (group home for the disabled) walked in. I suddenly felt flush and nauseated. "Oh my God, Dominic will grow up... and be like these people." Suddenly shame rose in my throat for being adverse to these people. Aren't these people the ones I've been given a passion for? Aren't these people the face of God in this backwards world? I was struck motionless, staring, scared. I realized Dominic may just survive, may make it to 50. Then what? What will we do then!?
I turned to my friend who has grown up with caring parents who both worked with people who have disabilities throughout her childhood and lamented about this situation. Somewhat beginning to panic, she calmly told me Dominic wasn't going to be institutionalized. We would care for him, it would all work out for the best. I discretely observed as the clients and the workers sat down, got their pizza and ate. The workers said nothing to the clients outside of what was necessary. They sat at the table either silent, talking to other workers, or looking on their phone. I literally had to hold onto the table to prevent myself from getting up and yelling at them to interact with the HUMANS they are sitting with, not their phones. The initial fear I felt was replaced with anger, repulsion, and a certain sense of protection for the clients. Using all my will-power, I held back from grabbing their phones and throwing them through the window. If you want to ignore the people you are eating with by living your virtual life, fine; but don't do it to people who can not ignore you back. They sat in silence and ate. No warmth, no conversation. Alone in a group.
This brings me back to my original point. Would placing him in the school I spoke about in my last post just be entering him into the system? Would I grow accustom to not caring for him, letting him be someone else's responsibility, someone else's problem, and make the decision when he becomes an adult to put him in a group home easier? Is the school the best for him? What goals do we expect from him when he becomes an adult? Can not his parents, who would die for him this very instant, not do a better job in educating him in what he needs to know to be as independent and successful as possible in his adult years?
Dominic likes two things: being around his family and going to mass. Can he not learn all he needs by doing these two things faithfully and well? As a wise man often tells me, we don't have to make every decision right now, we have time. A group home may be totally appropriate and the best decision for some people, but isn't that truth directly the result of the break-down of our family units and the extended family who are meant to come to the aide and take up the slack when needed? I fully, whole-heartily expect my children to pick up the slack when Mike and I are no longer able to care for Dominic. We are raising them intentionally to care for others at great cost to themselves, whether that be their own children or others who are dependent. I hope they become men and women who will forgo vacations and nice cars in lieu of providing a stable, loving, and faith-filled home for their families and for Dominic to live. If we can accomplish this goal, I say we have succeeded as parents.
We'll see about the school... we have time.
Wednesday, May 22, 2013
A school for Dominic
| Dominic enjoying some Gram time :) |
I'm not quite sure how to start this post, or what to say. I hope this is not offensive to anyone. But keeping loyal to my mission of allowing a peak into life with a special child, I must give myself to you honestly. The feelings that swell in my throat when I think of that hour spent in this school can be summed up in one word: "sucky." Forgive me for not being eloquent in my speech, but you see, my mind doesn't think that way. It has become accustomed to brutal honesty, and if I'm to remain faithful to myself, it is this same brutal honesty I need to share with you.
Now, don't get me wrong, the school is amazing. Everything I've heard of it from fellow professionals is right. It is one-of-a-kind, amazing, caring, nurturing, fostering the dignity of the child with special needs. To the mom however, all this therapist mumbo-jumbo jumped right out of the window. Being there hurt. You know when your feelings are hurt to a degree that you have physical pain in your heart and stomach? As a professional coming into that building to work, I would have been in heaven. As a mom coming into that building, I felt like I had been kicked in the throat. Let me explain...
We walked into the building and immediately saw the hall lined up with wheelchairs, one after another. As it turns out, every child in the entire school, except for 1, is in a wheelchair. Furthermore, they don't believe in allowing the children to sit in their chairs all day at school. We move from position to position throughout the day, and they make sure the students do the same (**score 1 for promoting dignity of "special" kids**). We walked into the office and everyone, including the principal, stopped their work and came out to greet us. They spoke directly to Dominic first. Every single staff member went down to his level, touched him, and spoke to him like a person. Everyone remembered his name and even started to call him by a nick-name, "Dom." There was not one employee who greeted us (the parents) first, and this is the way it should be. Everyone oohed and aahed over him, talking about how big and handsome he was and how they hoped they could work with him.
Then we walked down the elementary hall and went into every classroom. There was one teacher, one assistant and 4-6 students in each room. Every student was in some sort of therapeutic seating chair/device or standing frame, doing some sort of appropriate task. In one classroom, there was a little girl who was deaf-blind who could sit up on her own. She was shaking a bottle of water mixed with glitter and holding it right up to her eyes so she could see it. Another girl was lying on the floor putting shiny beads into a basket. Another child was lying on a mat in a stimulation corner, batting at the toys hanging from the ceiling. The teachers were attentive. Everything was appropriate. A lump swelled in my throat.
We went to the next classroom. A child was sitting in a special chair, also deaf-blind, happily trying to see who the intruders into his classroom were. One boy was sound asleep, postictal due to having a seizure that morning. Two other children were in standing frames, getting ready to go for their group water-play activity. I felt sick to my stomach.
Then we went to the third room. A man who volunteers his time was playing the bongos, doing a drumming group with the middle schooler's and high schooler's. The sound was intense, what I imagine natives dancing around a fire in the Amazon would hear. I walked in, the lights were dim, the sound was pulsating with the drum beats. I saw 10-12 older kids with severe disability, all in wheelchairs. The child closest to me was trying to move his disobedient arms to help beat the drum. Another child, next to him was holding what looked like a shaker, trying, and apparently enjoying, to ad to the music, though without much success as it would appear to the outside world. Dominic smiled, he liked the deep, loud rhythm. I ran out, unable to control my emotions any longer. I stood in the hallway and bawled like a little baby until a sweet woman saw and walk up and embraced me. She told me it would be okay, and that Dominic would be happy there, that she would make sure he would be happy.
After I composed myself, the tour continued. The gym had a giant blow up mat the kids can lay on to feel movement and all sorts of other gym equipment that is appropriate for such low-level children. The play ground was totally wheelchair friendly, including the wheelchair swing and the net swing where you can lay a child in and swing him. We finished by sitting in the teacher lounge and talking about logistics, age for enrollment and so forth. The sweet OT who gave us our tour said Dominic would have to be evaluated to come here, but he obviously would qualify. My immediate silent gut reaction was "what? He's not like these kids!"
As I said before, this is any pediatric PT's dream job. When I was working, I loved to work with children such as these. They are so simple, so good, so loving, so challenging. They come with complex histories that satisfy when understood and defeated. It is joy helping a child do something they were never supposed to do. I gloried in breaking the chains of a prognosis, being behind the child as they succeeded and proved that doctor wrong, being beside the mom as she saw her child beat the odds and rejoice.
Perhaps I will eventually think like-wise of this place from a mom's perspective. The harshness of seeing these kids, so many in one place, who live in disobedient bodies with minds that have betrayed their inherent goodness hurt. Mostly, it hurt because I had to admit that these kids were my kid. My child, though now still a toddler, is like these children. This is his peer group. As the time goes on the gap between Dominic and the other kids his age grows. We marvel at his slightest accomplishments. He are impressed when he looks at something, when he turns over to his tummy, when he holds his head up, when he reaches out to touch our face. But he is almost two. He should be running, jumping off of things, climbing, getting into trouble with his siblings, sitting in time out, potty training. He is a perpetual baby. The reality of this fact, perhaps for the first time so concretely, lanced my heart, delivering a near-mortal wound. Having to face the reality that he really won't get better (unless a miracle is willed by God), and that he belongs in such an amazing school was daunting, discouraging, and sad.
I do not curse his impairments, nor the God who made him that way. Still, I love his eyes that can not see my face, his ears that jumble my speech, his mouth that can not say "mommy," his throat that will not swallow, his heart that presents holes, his tummy that has to be fed directly, his little insides that were made backwards, his arms that can not reach for me, his feet that can not run to me, his mind that can not think clearly. I love him, all of him, just how he is. I praise God for giving him a broken body, a broken mind but a whole soul. I praise God for allowing me to hurt, this is a blessed poverty. I praise God for my broken heart, as I realize so many people do not take the time to suffer with the poorest. I praise God for allowing me to be joined to our Blessed Mother who also watched her Son suffer, I am never alone in her company. I praise God, for in His goodness He has given my children the opportunity to grow in charity, humility, and patience by being raised with such a saint as Dominic.
We have time to decide if Dominic will go to that school. Most likely he will and most likely I will learn each child's name, their personality, their likes and dislikes. Most likely I will fall in love with each and every one of them. Most likely I will rejoice with their mothers and mourn with their mothers. Most likely I will become family with the amazing people who work there. Most likely I will work tiresley to promote the dignity of every last child in that building. But for now, I still hurt a little, still mourn Dominic's reality. Still glory in his innocence, his goodness, his being made perfect in God's eyes.
Totus Tuus!
Chasity
Tuesday, May 7, 2013
"He isn't finished"
| perfect. |
Isn't it in our state of being "finished," of being "perfected," born normal that we must suffer? Our minds, all too often, are too complex and distracted to see what really matters. We look for fulfillment in all sorts of places, always coming up short it seems, until we force ourselves to become small like one of our "unfinished" brothers or sisters. In our complexity we reason and struggle and fight with true fulfillment, true happiness. We can see the source of happiness, but we don't want to look that way. We squint our eyes to deform the true Light and falsely convince ourselves that the manufactured light, the fluorescent lights of the world will fill that dark space in our hearts. The "unfinished" don't do this. They can not lie to themselves. And they are, in that sense, more perfect than we.
Their lack of complexity, their lack of "completion" enables them a sort of super-power: to see what's really there. They must trust, with complete abandonment, the people who care for them. They rely on others for their every human need, sometimes down to the most basic, uncomfortable necessities of life. Their humility is great, but unashamed due to their simplicity, they trust. They do not blush when their adult diaper is being changed, they know no better. Dominic does not worry that he will be dropped, that he will eat, that he will be loved. He trusts us completely. He only knows goodness. Even through the pains he has endured, the surgeries, the tubes, the lines, the tortures of gasping for breath when his trach is being changed, of being poked repeatedly by nurses, he trusts. He trusts us. Just as we are called to blindly, completely trust in the goodness of God in all circumstances, so the "unfinished" unreservedly trust that their care-taker wills the best for them.
They do not waste their time on empty past-times. They are not consumed with facebook posts or the latest tv series, both of which fill our real, deep longing for God with temporary, artificial fluff. They live in real life. They love the people who love them, and often the people who do not love them. They smile, they laugh, they interact as best they are able. They want real relationships, to talk to people, to be hugged, to be loved, to be held. They bring us "completed" individuals out of our cold, manufactured shells and force us to live in real time. To face the hard questions head on. To do what we were made for: to love another person, not a virtual person who can not love us back. We give them 1% of ourselves, they give us 300% of themselves. We add a drop of goodness to their sea of perfection, they consume our wickedness, our selfishness, our darkness and allow us to see that real, warm Light, that tangible Goodness for which we all seek. If we only allow our hard-selves to be submerged through loving these "unfinished," drowned in a sense by the only true source of Goodness, we can resurface with new eyes, ready to love as one of the "unfinished," the simple, the perfect people.
Totus Tuus,
Chasity
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