Despite my feelings about a support group at the hospital, I do applaud the staff up there who try. They see us crazy, stressed out parents, and they hear us. They try. They are doing
their best to meet the needs of grieving parents. But what are they supposed to do? It's not as if the Children's hospital could sponsor a "Free margarita night for all parents who are on the verge of loosing their minds" at the local bar. That wouldn't look so great.
There are times though that we DO need to go to the hospital for classes, additional information from the sweet family librarians, and support from the people up there who really do care. [[Side note: I worked at our local Children's hospital for 6 years and I can attest, I have NEVER met another employee who didn't love their job, who didn't stay late on a regular basis if their patients needed something done, and who didn't at least sometimes cry about a very sick or devastated child. I have seen/been that person who holds it together just long enough to leave the child's room. They care. It's just hard to see that all the time when we're on the other side. You get a bit mistrusting when it's YOUR baby hurting.]]
This is one of those times though where an extra trip to the hospital would be worthwhile. Cook Children's is hosting a "Pediatric Rehab Toolbox for Parents" Saturday, Sept. 29, 2012 from 8am to 1:30 pm. It will be filled with talks from a doctor, nurses (calm down medical momma's, it's not that nurse with the 2" red false nails that showed up on your doorstep that one night asking to take care of your trach baby... it's a good one), a PhD, other parents, and other professionals giving you the tools that could help you get what you want/expect from every appointment. Because there is nothing worse than leaving an appointment discouraged because you didn't get what you needed. They will also be talking about grief and coping, maneuvering the medical record system, and how to integrate outpatient therapy with school therapy. It's $15, but you get a discount for registering early. Visit this site if you think this might help you.
|Soux Chef Mary Grace stirring Dom's food|
|Head Chef Momma and Lil' Soux Chef Mary|
|Co-Chef MiMi helping out with making Dom's food. What would I do without her.|
|The best big Sissy in the world, feeding her "Baby Bubba"|