We're still waiting on his gene tests to get back (remember the whole exome sequencing that sequences all 22,000 genes... +/-, who knows?!?!). It has been quite a while so we are expecting that back pretty soon. Be assured, you'll be the first to know what the tests says.
We're home schooling the oldest three kidd-o's and it's working out perfect for our family. It gives us the flexibility we need with Dominic and it has been SO fun being with them as they learn and explore new things. Fun, but yes, crazy sometimes. This would be another reason I have neglected the blog, and through that, you faithful readers. I'll try harder... I promise this time!
Here's a typical day in the life of our little saint:
Tuesday through Friday he has at least two therapies a day. He gets PT, OT, ST (two different therapists, one for feeding and one for communication), VI (visual impairment teacher), O&M (orientation and mobility teacher), and soon AI (auditory impairment teacher). That's 9 visist a week. Thanks goodness for home therapy!
Between therapies he's entertained by the REAL Power Rangers!
After his sessions, he crashes for a good long nap. His therapists are relentless... just the way I like it! :)
He gets a good bath, a massage, and trach or tie change, depending on the day. He LOVES his baths!
...And more therapy from his siblings... "Roll, Dom, roll!"
He protests, but to no avail...
And on a good day, he gets some lovin' from his Mi Mi
Ever-faithful, Mary is Dominic's little mamma. She is constantly hugging, kissing, cuddling, trying to carry, lying on top of (scary) him. She'll be the one that takes over when Mike and I are too old, I just know it! :)
In Jesus and Mary,