Tuesday, March 19, 2013

A Day in the Life

Ever wondered what a little saint does in a day?  Well, you're about to find out!  To give you all a glimpse into Dominic's daily life, I followed him around with a camera recently in hopes to capture his day.  So, here it is, a day in the life of a little saint:

 Dominic's day starts early (unless it's Saturday, in which case he's been known to sleep til' noon) to get ready for a full morning of therapies. His wonderful nurse (whom without I would certainly go crazy, or at least be more cranky!) gets him dressed, fed, trach and g-button cares done, and ready for the day.  Here he is during his first therapy of the day with one of his visual impairment teachers, a sweet lady who loves Dominic almost as much as we do.
There is no rest for the weary! Therapies are normally separated only by a short break.  Therapy two this day was his speech therapist who works on feeding.  Please excuse the home made ghetto tray I have going there... :/
Every day he has either PT or OT, both of which really wear him out.  Here you can see how well he is doing, and how hard he works- to the point of collapsing.  I tell you what, those PT's and OT's and ruthless.  (FYI- I'm a PT, so I can say that;)

After a little rest it's time to go plant our Mary garden for the year.  Dominic doesn't like bright lights so anytime he goes outside he wears his super-cool shades.
"Later Skater"
So happy being out with the family!
The kids are so proud of their hard work.

At long last, nap time!  Dominic sleeps anywhere from 1-4 hours a day and this is normally the time we finish up his required time on the vent.  Here is our afternoon set-up: vent, cardiac apnea monitor, pulse oximeter, trachs, ambu bag, oxygen, and stuffed bear on his head... just keepin' it real for y'all :/

After nap time, it was boy time!  Here are the boys taking a break from shooting the bow and arrow to watch some instructional videos (always a good idea).  And yes, the boys have a bow and arrow... Mike did the birthday shopping this year.
Dominic's day is peppered with Mary-lovin'.  Throughout the day he gets pats, squeezes, kisses, hugs, holds, and even sometimes some trach blockage... sigh.
After a hard day's work it's finally bed time!  Here Dominic is watching his feeding tubes being washed and (presumably) is excited at the thought of eating again soon!
How I wish I could show you all of what you can't see in these pictures!  I wish you could see the many pats, kisses, and hugs he gets throughout the day by whomever passes.  I wish you could see the level of spoiled this child is by his day nurse who rocks him to sleep and most often holds him during his naps.  I wish you could be here to see the real, hard work that goes into his real food and med preparation.  I wish you could see him squeal with delight at family meals and prayer.  I wish you could see his perfect smile when he takes turns cuddling each of his siblings at night for our family rosary.  Alas, a camera can only capture moments, not love... you need real life for that.
St. Joseph, pray for us!
-his mom


  1. I've missed hearing about sweet Dominic! It's amazing how much "work" goes into a day, but the amount of love is worth every second and more! Keep up the good work!

  2. Chasity, you always have me crying tears of joy for your family. Prayers for all of you. :-)