As a pediatric PT I have treated lots and lots of kiddo's with CP. The one that sticks out the most was a sweet little boy named David. I was helping David learn how to do all sorts of things, with the final goal of walking. He had this reverse walker (it wrapped around the back of him instead of the front so it was very stable) that he would use and he would literally run and pick his legs up and let it roll. It was always a fight to make him walk, not run and roll. The tone in his arms was enough that he could hold himself up on the walker while he picked his legs up from the floor and rolled. Come to think of it now though, I bet that was alot of fun. No wonder he hated walking with me... what kid wouldn't want to roll around like that?
I'm telling you this for a couple of reasons. One, I have this stigma attached to this diagnosis from years of treating kids with it. They can be from functional with just some difficulty with movement all the way to completely unable to do any purposeful movement at all. I have this face attached to this diagnosis, this body I see contorted like a pretzel, this wheelchair that requires a special seating system due to the extreme contractures and malformations of the body. But I also have another picture of it and it looks like David. Happy, mischievous, pestering big brother, "normal" kid who loves to roll on his walker. And now Dominic. Sweet, chubby little man who smiles with his whole face, not just his mouth. Who likes to bury his face in my shirt to cuddle. Who likes to be held in just the right way, who lights up when the noise of play from his siblings surrounds him. God is for sure releasing me from all my past prejudices of treating kids with special needs. You know, the fear you secretly feel that your own kid could ever be like this? The tiredness you feel after a 45 minute session with them. Being unable to imagine life with that kid... and not giving it much thought after he leaves the therapy gym.
OK, back full circle... last night the video with the girl with CP doing adapted CrossFit broke down some of those walls I have in my mind. It gave me hope. Who knows what Dominic will be able to do as he gets older, but I now know that whatever his functional level is, he will be able to CrossFit with his Daddy and brothers... just one of the boys in the gym. Just when I feel stagnant, God continues to move me forward. Giving me hope. Nudging me to move on. He is so good and faithful, even to me who is seldom faithful and mostly nonchalant towards Him. Won't He ever tire of constantly getting my attention? I don't think so. After all, He paid a high price for me.
In Jesus and Mary,
|CrossFit Daddy and Son snoozing|
|Mary reading my Magnificat|
|Dom loves being held by Mary... and she is very serious about he job!|